Useful Resources
Useful Resources
The NCTO maintains a library of useful resources and archived documents. These may be of use to our partner organisations or individuals who work in any area of the research landscape. If you do not see a tool or resource listed below, please contact ncto@ucc.ie for further information.
The NCTO maintains a library of useful resources and archived documents. These may be of use to our partner organisations or individual’s who work in any area of the research landscape. If you do not see a tool or resource listed below, please contact ncto@ucc.ie for further information.
Tools & Resources:
For queries in relation to this document please contact ncto@ucc.ie, your queries will be passed on to the Health Research Data Protection Network (HRDPN) for response.
This section is aimed at clinical researchers. It aims to provide an introduction for researchers who are relatively new to patient and public involvement. It contains published PPI guidance’s on ‘how to do’ PPI as well as links to recommended online resources.
Irish academic and health organisations are part of a national framework for supporting PPI activities called PPI Ignite – https://ppinetwork.ie/
- Briefing notes for researchers – involving the public in NHS, public health and social care research by INVOLVE 2012
- Involving patients and the public in research. Published by The Healthcare Improvement Studies Institute, 2019
- Impact of public involvement on ethical aspects of research. Health Research Authority – INVOLVE (2016)
- Patient and Public Involvement in Health and Social Care Research – NHS
- Cancer Research UK Toolkit – Summary
This section is aimed at clinical researchers. It contains a number of PPI planning toolkits, quality guidances, costing templates and examples of how to plan PPI activities in the areas of Clinical Trials, Systematic Reviews.
Planning PPI in Clinical Trials:
Planning PPI in Systematic Reviews:
Planning PPI Relationships:
Planning Tools:
This section is aimed at clinical researchers. Planning to work with Lay People? This folder contains tips on how to improve your feedback to PPI contributors as well as what to consider when developing training & support packages for members of the public.
This section is aimed at clinical researchers. It contains examples of how to measure, evaluate and report on the impact of PPI in research. It includes an impact assessment framework and a number of relevant systematic reviews of PPI impact in research.
Reporting Impact:
Evaluating or Measuring impact:
Impact Assessment Frameworks:
- The Public Involvement Impact Assessment Framework: Executive Summary PiiAF Study Group January 2014
Systematic Reviews of Impact:
This section is aimed at clinical researchers. Thinking of producing material for patient/public audiences? This folder contains examples of how to facilitate public involvement in the design, review and communication of both study material and research results.
Facilitating Public Review of Study Materials:
Plain English Guidance:
This section is aimed at patients and/or members of the public who are interested in this area. It contains, for example, information on what PPI is, why it is important and how to get involved. It also references a number of education & training opportunities in Ireland and at the European level.
How to get Involved in PPI:
- A guide to working with universities on research projects, Community Toolkit
- Formal Education and Training Opportunities
- Adding Value and Impact: A Toolkit for Consumer Members of Clinical Studies Groups
What is PPI?:
- Durham University: What is doing research together?
- Involve – Guidance on co-producing a research project
- Involve – Starting Out: Essential information for members of the public getting started in involvement in research
Why get involved in PPI?:
