Corporate Enabling of Clinical Research (CECR)

Irish Platform for Patient Organization’s (IPPOSI) – Patient & Public Involvement (PPI) in Clinical Research

Tools and Resources for Planning PPI

How to do PPI. This folder is aimed at clinical researchers. It aims to provide an introduction for researchers who are relatively new to patient and public involvement. It contains published PPI guidance’s on ‘how to do’ PPI as well as links to recommended online resources.

Planning for PPI. This folder is aimed at clinical researchers. It contains a number of PPI planning toolkits, quality guidances, costing templates and examples of how to plan PPI activities in the areas of Clinical Trials, Systematic Reviews.

Working With the Public. This folder is aimed at clinical researchers. Planning to work with Lay People? This folder contains tips on how to improve your feedback to PPI contributors as well as what to consider when developing training & support packages for members of the public.

Evaluating & Measuring Impact. This folder is aimed at clinical researchers. It contains examples of how to measure, evaluate and report on the impact of PPI in research. It includes an impact assessment framework and a number of relevant systematic reviews of PPI impact in research.

Designing Patient Information. This folder is aimed at clinical researchers. Thinking of producing material for patient/public audiences? This folder contains examples of how to facilitate public involvement in the design, review and communication of both study material and research results.

Guidance for Public. This folder is aimed at patients and/or members of the public who are interested in this area. It contains, for example, information on what PPI is, why it is important and how to get involved. It also references a number of education & training opportunities in Ireland and at the European level.